Lucas K's quilt    (Quilt Completed)

Thank you

His quilt has arrived and I'm overwhelmed. It's awesome and so beautiful. Thank you ladies so very very much. I can't express how grateful and appreciative I am for your kindness, your thoughtfulness and all the love and hardwork you have all put into making such a beautiful quilt. I've attached photos for you. Sorry little man doesn't look too happy - he's been a very poorly boy for a quite a while. Here is is chillin on a Sunday morning watching Frozen.

Once again thank you so very much.
Best wishes from this very emotional mum xxx

Finished photos

Individual squares

Fabric

Card

Stitched by: Paula Chaney

Biography

Lucas was born on Mothers Day at a healthy 7lb. He was a very happy baby with no problems, reaching his milestones as expected.

At 5 months old he had his first seizure - and then all hell broke loose. Within 24 hrs from his first seizure I went from having what I thought was a perfectly healthy 5mth old to being told that my child had a rare genetic brain disorder - lissencephaly. I was told he would be severely disabled, have difficult to control epilepsy, be totally dependant, be unable to show any form of emotion and as if that wasn't enough - his condition was life limiting and it was extremely doubtful he would live to 2yrs due to the severity of his condition.

Well Lucas is now 9 and half yrs old - yes he is totally dependant on me, and no he can't walk but he can let you know exactly how he's feeling with his very expressive face. He does show emotion and lots of it - happy, sad, angry, annoyed, bored, frustrated - his facial expressions are definite and leave you in no doubt of his mood. His character and personality shines through. He deals with so much everyday - he has seizures day and night but he is such a little soldier and has more fight and strength of character than anyone I've ever met. He has been blue lighted to hospital more times than I care to remember and I've nearly lost him so many times. He is my reason for living and the best thing I have ever or will ever do in my life.