Thank youWhat an absolutely stunning piece of personalised art you've all created, Chloe had huge smiles opening this quilt and is already asking to snuggle up under it. Thank you to everyone involved in making her this awesome quilt. Was fabulous seeing her so happy opening it. Lots of love Chloe & her family xxxxxx
Sadly, Chloe passed away on 28/05/15
|
BiographyChloe was born a happy and healthy little bundle of joy on new years day 2003 all seemed as well as could be.. when Chloe was 4 months old she got got a very sore rash that the doctors stung led to find out what it was or how to treat it, we kept her in from sunlight and plastered her in creams. Chloe never really grew much & was always under weight and not reaching her targets, in may 2008 chloe contracted meningitus and was rushed to the intensive care unit and put on life support for 5 days, Chloe recovered pretty quickly and we was sent home with steroids to help her adrenal gland function. Later that year in September chloe got rushed into hospital again. This time with complete heart block she had a life saving operation giving her a pacemaker, while in on this admission chloe's kidneys started to fail slowly, and she was put on medication to replace vital salts and supplements the blood and body needed, she was discharged and kept under close watch, as the months ticked by chloe was in and out of hospital to have fed ding tubes put and started overnight feeding, she later Contracted type 1 diabetes and had to deal with being injected regularly. Shortly after this chloe's kidneys failed to the point of Beeding haemodialysis in the summer of 2010. Resulting in going to hospital 3 times a week for 3 hourly sessions of dialysis sometimes very gruelling...ore often than not she's happy enough and enjoys doing her school work on haemo. In 2011 to try and help chloe stop contracting chest infections she was put on a bi pap ventilator and (touch wood) she hasn't had a chest infection since... Chloe done really well until the 1 St of march this year when she had a lactate stroke, she lost her ability to walk and talk and the left side of her body went completely f loopy, it took a lot of rehabilitation and dedication to help chloe learn to walk and talk again still now she's got trouble with her speech but this isn't stopping her or getting in the way of her life she's determined to make the best of any situation, battling on with a huge smile on her face :)
|