Phoebe F's quilt    (Quilt Completed)

Thank you

Wow!!! the quilt is amazing. the photos really don't do it justice. Thank you all so much. Phoebe loves it xxx

Finished photos

Individual squares

Fabric

Card

Stitched by: Nicola Bailey

Biography

After a very stressful pregnancy we were aware that Phoebe would be born with bilateral talipes. It was apparent shortly after birth that this was not her only problem. Phoebe would regularly choke & need help to clear her airway & was a very poor feeder. At her 6 week check a heart murmur was discovered. A few weeks later she was diagnosed with pulmonary valve stenosis. Phoebe was eventually diagnosed with noonans syndrome which affects all the bodies systems. Her heart condition at present remains stable however if worsens will require open heart surgery. Phoebe suffers from severe hypermobility and hypotonia. Due to this she suffers multiple dislocations of her knees & severe joint pain and requires regular analgesia to reduce her level of pain. She is unable to walk for long distances and keep up with her friends and has use of a wheelchair and frame. She is currently under investigation for juvenile arthritis.

Phoebes bilateral talipes has been very difficult to manage and she under went surgery last year to correct her feet. She now wears hinged AFO to help her walk and correct the position of her feet however she regularly relapses and requires further plastering. It is likely that Phoebe will require major reconstructive surgery to her feet.


Despite the chronic pain, dislocations and many many hospital appointment & investigations Phoebe is an amazing, happy, beautiful little girl.