Ezmae's quilt    (Quilt Completed)

Thank you

Ezmae received her quilt today..it's beautiful thank you so much..xxx

Sadly, Ezmae passed away in January 2017 :(

Finished photos

Individual squares

Fabric

Card

Stitched by: Judith

Biography

Ezmae was born via a emergency c-section at 41 weeks after her heart rate dropping rapidly she was born with her cord wrapped around her body,she needed no help we were told she was a healthy baby girl. She began to have seizures and dystonic movements and was taken into Intensive care unit she also would not feed either.

All types of tests were carried out we were told there was nothing wrong with Ezmae and we could take her home.
We then had a 6 month battle to try to get Ezmae diagnosed. Finally we were transferred to the Evelina childrens hospital and we got a diagnosis.

Every day is a battle for Ezmae she cannot walk,talk has no head control and is nil by mouth because she cannot suck nor swallow. She has daily Seizures painful dystonic postures and gets intermittent catheters.

We have recently been advised to begin Ezmae's end of life care plan each and every day spent with Ezmae is so precious to us and to her brothers and sisters.x