Maisy Hope's quilt    (Quilt Completed)

Thank you

A huge thank you to all who were involved in the making of
Maisy's love quilt. It truly is so beautiful and will be cherished always. I had admired these on this site for many months and often thought of how lovely it would be to have one for Maisy. This means even more to us as two very special people were also able to be involved with this and that would be my sister Helena Perkins and my very good friend Tiffany McLean who stitched the name square and the Rose Fairy. My sister is not only Maisy's Auntie and very special godmother but a carer of her too. She is the only one we trust to look after our precious girl when my husband and I need a little break or when we need to spend time with our youngest daughter Poppy. Maisy loves her so very much so it means the world to us for her to be apart of such a wonderful thing and my friend Tiffany has been with us right from the start she has watched Maisy grow from such a tiny fragile little baby to the beautiful young lady she is today and has always supported us along the way. It is also a memory of my dear mum. Maisy's granny passed away very tragically nearly 3 years ago ;( she was the most amazing mother and grandmother. Maisy and her granny had a very close bond as you can see from the photo . Her name was Rosemary. Ironically one of the squares was stitched by a lady called Rosemary and one of my mums favourite flowers were snowdrops which is also one of the flowers on another square and of cause roses. My mum always intended to make Maisy a quilt like this but sadly never got around to do it so Thank you once again. All of the fairies are absolutely stunning and gives such a magical feel to the quilt which is just like our little Maisy. Also to the lady who put the quilt together. A truly special thing that will be forever treasured today and always :) xxx

Finished photos

Individual squares

Fabric

Card

Stitched by: Emily Baker

Biography

Maisy was born at 31 weeks due to a severe case of pre-eclampsia. Early delivery was the only way both Maisy and I could be saved. She was born by emergency C-section at a tiny 2lb 12oz. Despite being so early she seemed to be quite healthy she required C-pap for 3days and then started breathing on her own. A routine ultra sound was done when she was 2 weeks old these showing that she had bleeds on the brain. It was touch and go for a while but the bleeds stopped and she continued to progress. She had to have 3 blood transfusions and light therapy for severe jaundice and several other types of treatment due to infections. she spent 6 weeks and her 1st Christmas in SCBU and we got to bring her home fully breastfed on the 3rd January 2005 still at a tiny 3lb 9oz. That's when our lives changed forever. Gradually we realised several things that were not quite right. She wasn't focusing on anything, not smiling, she also started to have seizures and her muscle tone was so floppy. We knew something was wrong. After an MRI and several other scans, tests and a 3 week stay at the Evelina Children's Hospital in London she was diagnosed with being blind, a severe form of epilepsy called Infantile Spasms ( wests syndrome), quadriplegic cerebral palsy, microcephaly ( small head growth). It was a life changing moment for my husband and I. The outlook back then was very bleak we daren't look too far ahead as we were told that she may not even get to being a year old as at that time she was having over 200 seizures a day but 10 years on she is still fighting with all the strength she has. She has fought through so much and we have nearly lost her several times. She suffers severely with chronic lung problems and severe chest infections especially in the winter months but she fights every single one as well as anything else that comes her way. She has a dislocated hip and shoulder and she is also non verbal but she does smile and giggle which melts our hearts every time. She is our Amazing Maisy and we love her so very much xx