LoveQuiltsUK - Erika M 's quilt

Erika M 's quilt (Quilt Completed)

Born:	2013
Illness:	Infantile epileptic encephalopathy
Theme: Cute Animals (Emergency Quilt) Quilt delivered: 5th Feb 2016

Thank you

Thanks so much for Erika's beautiful quilt! It arrived at the hospice today and has been admired by everyone..She's still very delicate so no smiles yet, but knows that something very special had been given to her.

Sadly, Erika passed away on 26/11/2016 :(

Finished photos

Quilted by: Tracey E

Individual squares

Stitched by: Anne G (+) Submitted: Nov 2014	Stitched by: Donna Ryan (+) Submitted: Nov 2013
Stitched by: Gilly Painter (+) Submitted: Feb 2014	Stitched by: Joanne (+) Submitted: Jul 2014
Stitched by: Julie Edgcumbe (+) Submitted: Apr 2014	Stitched by: Kirsty Edgcumbe (+) Submitted: Jul 2014
Stitched by: Kirsty Edgcumbe (+) Submitted: Nov 2014	Stitched by: Laura Hall (+) Submitted: Jun 2013
Stitched by: Leanne Malcolmson (+) Submitted: Nov 2014	Stitched by: Liz (+) Submitted: Feb 2014
Stitched by: Marie (+) Submitted: Feb 2016	Stitched by: Moira Anne Jeffcoat (+) Submitted: Aug 2013
Stitched by: Paula Dewar (+) Submitted: Jun 2013

Fabric

Card

Stitched by: Nicola Bailey

Biography

Erika's problems didn't start to declare themselves until 7 weeks of age when she had her first seizure. Then followed a two year quest to reach a diagnosis, we have recently had after exome sequencing. Erika has a new mutation in the SMC1A gene which is causing her condition. She is PEG fed and fully dependent for all care. Life with a profoundly disabled child is challenging but Erika has brought immense love and joy into our lives.
Currently she is hospital after very bad seizures and is going to be transferred to the hospice for symptom control. She is a fragile little fairy but has pulled through life threatening illnesses in the past so we are hoping for the best.