Isabella E's quilt   (Quilt Completed) |
Born: | 2010 |
Illness: | Collagen 4A1 Mutation
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Theme: Female Disney Characters
Quilt delivered: 17th Sep 2015 |
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Thank youI would like to say a big Thank you to everyone who put the time and effort in to making Isabella's amazing quilt, it arrived yesterday in perfect timing as she just got home from being in hospital for 3 weeks, such a lovely present. I can not thank you enough!
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Finished photos
Quilted by:
Vicky
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Individual squares
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Fabric
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Card

Stitched by: Elaine Dixon |
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BiographyIsabella was born with a genetic condition COL4A1. As a result of her genetic condition she has epilepsy tonic clonic seizures and tonic spasms suffering between 50-80 tonic spasms daily and tonic clonic seizure when she is unwell. She has 4 limb cerebral palsy and GMFCS5 with cerebral visual impairment (she is registered blind), Global developmental delay, Gastro-oesophageal reflux and she is jejunostomy fed over 19 hour daily. Isabella is a brave and strong little girl she suffers many chest infection as I write this she is in hospital with pseudomonas on a Airvo machine (optiflow ). She was in picu with pseudomonas only 2 weeks previous to this admission to hospital.
Through all her daily challenges she always manages to smile. We are very proud of Isabella.
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