Born: | 2011 |
Illness: | Ex prem29wks, chronic lung disease,pulmonary vein stenosis, and,vsd, pulmonary hypertension-resolved.pulmonary vein stents, right side hemi-stroke,
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Theme: Space
Quilt delivered: 11th Nov 2015 |
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BiographyTyler was born emergency c section 6/4/2011. Spent 15months 10days solid in hospital, mainly nicu,Hdu and PICU. Was a pickle with aspiration, was at 6months old when he crashed at the time was only thought to be bronchitis..blue lighted to London extremely critical. Few very nervous days and tests..eventually diagnosed with complex pulmonary vein stenosis,(had cardiac catheters oct & jan, was feb 2012 he had to have adult metal stents put in middle of veins to keep him alive. 48hr later suffered a massive stroke..month before his 1st bday. Back in Hdu in Brighton celebrated his 1st birthday April 2012. Has been admitted a couple of times since his discharge from hospital in July 2012 but not cardiac related! Stents where they are can't be replaced, be too risky..he's just turned 4! Started to bum shuffle, some words, and signs few bits. Still NG and can only manage jar food.souped down..attends main stream nursery, has been unwell this winter with colds and viruses but has stayed away from admission even with an ambulance ride to a&e! Proud big bro to ex 25weeker Roxanne who's 9months old.
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