Ava M's quilt    (Quilt Completed)

Thank you

I cannot thank everyone enough for all the hard work you all put into it. I love it, everyone who's seen it loves it and best of all, Ava was thrilled by it. Not only have you given her this amazing gift you actually gabe me my first night's uninterrupted sleep in a long time because she slept in her own bed because of the new quilt. Thank you all again so much xx

Finished photos

Individual squares

Fabric

Card

Stitched by: Leanda Vickers

Biography

From the day I brought Ava home I knew in my gut something wasn't quite right but she seemed healthy enough and midwives had no concerns so I put it down to new mum paranoia. She weighed 6lb 4oz but was taking a lot of milk but it wasn't settling in her stomach. Every day the midwives then the health visitor were out I questioned her feeding, amount of dirty nappies etc but they said see how she goes. On the 30th April I got a phone call from the health visitor saying we have to go to our local hospital the following day because of the results of the heel prick test but they couldn't tell me anything else other than the name of the consultant we had to see at 10am the next morning.

Nothing could have prepared us for getting any kind of diagnosis. I truly believed it was just a repeat test needed. The words cystic fibrosis really didn't mean anything to me. I had heard of it but didn't know what it was.

It was a few hours of explanations, being showed physiotherapy, being told about medications & going home only remember the words cystic fibrosis.
From that day Ava has been on medicines & vitamin supplements to help her stay as healthy as possible & gain weight which can be hard.

She has physio twice a day for 15 minutes a time which goes up to 4 times a day if she had a cough or cold this helps to clear any mucus in her lungs hopefully keeping her free from
Infections.

She was admitted into hospital in December for 2 weeks of IV antibiotics because even after 4 weeks of extra antibiotics & extra physio sessions a day at home her infection wouldn't clear.

She's a happy, smiley, fun loving girl who takes everything in her stride & puts some adults to shame because at only 2 years old she can take all her meds by herself even the pills. She's very active like most toddlers but this also helps to keep her lungs clear with all the running around she does. At present she's doing well & all her team are extremely happy with how she's growing. She gained 1lb at last check up which doesn't sound that much but for her any gain is great. X