Connor C's quilt   (Quilt Completed) | ||||||||||||
|
||||||||||||
Thank youHello, would like to say a huge thank you for Connor's music quilt. It is absolutely beautiful and we would like to thank everyone involved. We were so over whelmed when we opened the parcel. Connor isn't very well at the moment, so I'm sure it will bring great comfort to him. it means so much to us and we will treasure it forever. | ||||||||||||
Finished photosQuilted by: Leanda | ||||||||||||
Individual squares
| ||||||||||||
Fabric
| ||||||||||||
Card
| ||||||||||||
BiographyConnor was very delayed and was not meeting mile stones. He was eventually diagnosed with global developmental delay. At 6 years old Connor's intractable epilepsy started which has very problematic. Shortly after this we received the diagnosis of MECP2 Duplication Syndrome. He also has hypotonia which is low muscle tone. Due to this Connor is now in a wheelchair all the time and is unable to walk. He spends a lot of time in hospital with reoccurring chest/pneumonia infections. |