Rosie W's quilt    (Quilt Completed)

Thank you

Wow look whats arrived, it's fantastic. Rosies been a bit poorly with a chest infection the last few days so she snuggled up with it. Thank you to all the lovely people who stitched Rosies quilt its absolutely beautiful xxx

Finished photos

Individual squares

Fabric

Card

Stitched by: Sandra

Biography

As a foster a carer I'm used to lots of little bundles of joy arriving on my doorstep. In September 2008 our little Rosie arrived with her social worker, who put her down in her car seat and said so matter of factly "she's failed her hearing test and goes blue when she's feeding" and with that off she went. That very moment when I picked her up I was in love with this little angel. Rosie was such a quiet baby and never cried and she did indeed go blue when she was fed. At 3 mths old Rosie started to have seizures called infantile spasms and then spent her whole first year of life in hospital on and off, only ever home for a few days at a time. At 6 mths Rosie stopped breathing at home, I resusitated her. At age one Rosie got chicken pox and a group A strep infection, we nearly lost her. We were told she would only live till she was 2. At age 2 we realised that we could never let her go and so adopted our little angel. Age 3 Rosie started school with a 1:1 carer, which was a massive step and has taken me a long time to find a carer who can manage all her needs and still love her like we do. Over the years Rosie has had a button and fundo and illeostomy, she is catheterised and is totally dependable on us for everything' she does. She has chronic lung disease and has bipap over night, oxygen, an NPA and wears a neck collar to support her breathing. Rosie has developmental age of a 6mth old. Just recently she has had her hips put back in to help with her pain when in her stander. We also discovered she has heart problems, increased pathway septum and prolonged QT. She has started the ketogenic diet to control her epilepsy, were in the early stages of that and not sure if it will work. Rosie has always been a quiet little girl but in the last few years she's made massive strides being able to recognise familiar voices and processing more information that she hears and sees. Her favourite toys are tactile, she loves her LED lights and having a hydro therapy bath. She has the most amazing smile despite all she's been through and she means the world to us.