Edward Y's quilt (Quilt Completed) |
| Born: | 2010 |
| Illness: | Hydranencephaly
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Theme: Sea Life
Quilt delivered: 25th Jun 2011 |
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Thank youEdward's quilt has arrived and it is beautiful :)
It's such a lovely thing to do, we really appreciate everyones kindness, thank you.
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Finished photos
Quilted by:
Anna
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Individual squares
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Stitched by:
Diana Tanner
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Submitted: May 2011
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Stitched by:
Heather
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Submitted: May 2011
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Stitched by:
Jan S
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Submitted: Feb 2011
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Stitched by:
Joanne
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Submitted: May 2011
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Stitched by:
Karen Guy
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Submitted: Jun 2011
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Stitched by:
Karen Guy
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Submitted: Jun 2011
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Stitched by:
Kay
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Submitted: May 2011
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Stitched by:
Linda
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Submitted: Apr 2010
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Stitched by:
Magda
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Submitted: Apr 2010
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Stitched by:
Pascale
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Submitted: Jun 2011
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Stitched by:
Pascale
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Submitted: Jun 2011
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Stitched by:
Sue Torode
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Submitted: Jun 2011
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Fabric
Donated by: Patricia, NI |
Donated by: Karen, Swansea |
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BiographyEdward was diagnosed with hydranencephaly at a 32 week scan. The doctors explained that a stroke had caused a normal brain to be reabsorbed, leaving only the Brain Stem. They warned that he was unlikely to survive the birth and if he did, would only live for a short time.
Although he has needed a shunt to drain the excess fluid that has replaced the missing brain and a gastrostomy and Nissen Fundoplication to help with very bad reflux and assist feeding, Edward has defied expectations and is still very much alive 15 months later. He amazes us every day at his determination to cope with breathing, feeding, swallowing - in fact all those things that we all do without thinking.
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