Daisy A's quilt    (Quilt Completed)

Thank you

Daisy's quilt arrived from Love Quilts today,lovingly stitched from people all around the world. A special thank you to our past Demelza Nurse. Thank you Paula,love your addition to the quilt.This will be taken to hospital when she is admitted in a few weeks.

Finished photos

Individual squares

Fabric

Card

Stitched by: Paula Charnley

Biography

Daisy had a relatively normal childhood until she was 8 when she was diagnosised with Ehlers Danlos Hypermobility. She now lives in constant pain with all her joints subluxing and dislocating constantly throughout the day. It also affects Daisy's gastric tract so she feels nauseated all the time.and struggles to eat and maintain her weight.Daisy is constantly fatigued and frustrated she cannot keep up with her friends. She no longer participates in PE or dance but undertakes physio daily at school and has a teaching assistant to support her needs throughout the day.
Daisy also has progressive scoliosis so wears a body brace for 20 hours and will most likely require surgery to correct this.
Daisy's father underwent a total gastrectomy,total removal of his stomach 2 years ago when it was discovered he had a rare genetic disorder Juvenile Polyposis Syndrome and Daisy has also inherited this and is reviewed at St Marks to monitor progression of the polyps within her bowel.
A year ago Daisy's elder sister who also has EDS was diagnosised with intestinal failure and now relies on intravenous feeding to maintain her nutrition. Millie was in hospital for 5 months and this was really difficult for Daisy as she was at home with her Dad whilst Millie and I were at the hospital.
All this said Daisy is a determined young lady with a wicked sense of fun and humour. She is so very warm and kind and everyone who meets her says she is such a little inspiration.
Throughout such a tough few years for our family Daisy always makes us smile and her compassion for others in need is always apparent. Putting others before herself. For her to receive a quilt will bring such happiness to someone so young who continues to endure so much.
Thank you so very much from the bottom of my heart.
Sue Allen, Daisy's mum x