BiographyHaving osteogenensis imperfecta runs in my husband's side. Him having the condition too the chances of a baby with OI was 50/50. When I fell pregnant with Grace we'd had one child with OI and one without and thought we'd be able to cope with any fractures etc.
She first broke her left femur at 20 months old from tripping over a toy, this meant she needed to be placed in a hip spica for the bone to heal. By the time she was out of cast and pulling herself up to walk again she fell and broke the bone again, 6 weeks in cast and she broke for the 3rd time in 5 months. I managed to email a lovely orthopaedic consultant who offered a telescopic rod to be placed in her left femur as it was severely bowed due to the repeated fractures.
Since the rodding surgery in 2011 she's had a few more broken bones, mainly legs and arms. In March she broke two arm bones twice in one week! That was a traumatic day. She's a feisty little girl, doesn't let her disability stand in her way and she makes my heart skip a beat or two when she's up to mischief!
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