Nicole was born at 37 weeks, she was a healthy yet small little girl but over a small amount of time she wasn't thriving and was constantly hungry. At 4 months old Nicole had a sweat test and this came back that she had cystic fibrosis. I knew nothing about it, I just thought my world had fallen apart.
She had a rough start in life, constantly in and out of hospital for chest infections, she had a port fitted in 2006 and August of last year had a gastrostomy fitted. She is in hospital every 3 months for 2 days while she starts a 2 week course of iv antibiotics which we continue at home.
Recently from November to December 2015 Nicole had a 6 week course of ivs and stayed in hospital because her lung function was getting down to 50%. Today she is doing well, her lung function is 77% and her weight is going up. Nicole is a fighter and will continue to fight all the way. x