BiographySophie was born at 11am and within half an hour she was taken away from me, as she had had some milk and then started to vomit bile and her tummy was distended so they took her away for some further tests and we were told she would be having emergency surgery.
We received the official diagnosis when she was a week old that she did have cystic fibrosis so she was started on daily physio and creon to help her break down food, plus daily lifelong antibiotics and vitamins.
Since coming home she has had frequent coughs resulting in extra antibiotics and also she has had two further bowel blockages which resulted in hospital stays and industrial strength laxatives.
She had the operation late the same evening as she was born.
We later were told that she had a bowel blockage and that this was more than likely Meconium Ileus caused by Cystic Fibrosis. She went on to have another operation a week later as another blockage occurred and she had to have a stoma this was to last for 7 weeks until she another operation at 8 weeks old to reverse the stoma. Consequently her first 2 months were spent on the neo-natal ward. She finally was allowed home on 18th December after suffering from an infection following the stoma reversal.
It was the best day ever but also the scariest as she had been through so much in hospital and I was quite scared to bring her home.
Her daily routine consists of medication morning, afternoon and evening, plus creon with her meals. She also has two-three types of physio every day. She also has to eat extra calories each day as she doesn't absorb all of the fat from her food she will need over 3000 calories a day as gets older.
She also has to be very careful being around stagnant water and people with chest infections due to the risk of cross infection.
Apart from that she is normal 3 year old and takes everything in her stride and we love her to bits.
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