Millie H's quilt    (Quilt Completed)

Thank you

Omg Millie received her quilt this afternoon and it's GORGEOUS ❤ She's so made up about it saying that she's having a sleepover in her brother Ben's room with it tonight, and she's taking it with her on her next respite sleepover and that she "love it forever and ever and ever and ever and ever and ever." Absolutely reduced me to tears. Thank you SO MUCH everyone, I still can't believe that complete strangers can do something so amazingly wonderful and lovely. You guys are...I can't find the right words

Finished photos

Individual squares

Fabric

Card

Stitched by: Becky Keith

Biography

Millie was diagnosed antenatally at 20 weeks. Born in Bristol she was transferred to Evelina's in London at 5 days as Bristol didn't feel they could deal with her. She flatlined at 5 days old in London whilst we were en route behind her. Thankfully they got her back but had to place her in an induced coma for protection. She had a CT scan the following day whereupon the full nature of her diagnosis became apparent and we were advised that the kindest route would be to let her go. We refused to accept this and sought a further opinion from Birmingham Children's who felt they had a small window of opportunity. Blue lighted in rush hour traffic on a Thursday afternoon to Birmingham. She received her first open heart surgery the following day. We spent two months then, still in hospital, trying to grow her so that she could receive further open heart surgery, which she had in late July. Finally discharged home in mid august, she suffered a minor stroke (her second one we later discovered), which left no further damage. She then had her third open heart surgery in early March 2012.

Since then, we have discovered that she is not viable for her final stage surgery, which would normally see her into adulthood. However, there are currently discussions ongoing using a technique that has only been carried out a number of times, but is massively high risk. The choice though is simple: Carry it out at the appropriate time and risk losing her or her ending up with poor quality of life should things go wrong. Do nothing and lose her anyway. The only other option is, once she becomes critically ill again, to place her on the transplant list and pray heart and lungs become available in time....

She's defied everything that was said so far; that she wouldn't survive, that she would be impaired, that she wouldn't be like her brothers and sisters. Somebody forgot to tell Millie that though. She's coming up 5 now, is in mainstream school and tries everything her siblings do with not much sign of slowing down. Our little miracle munchkin princess <3