Erin was a normal bouncy baby girl who always gave 100% in everything she did. Then everything changed 2.5 years ago.
Walking became painful, the wind and rain would cause extreme pain until the point of collapse. In January 2013, Erin just collapsed in pain and couldn't move her legs, many Dr's thought it was just growing pains. After multiple london hospital appointments and a rehab at Great Ormond Street, I decided to take her privately to get advice. We saw a lovely man called Professor Graham who confirmed the diagnosis of EDS along with POTS and other problems, everything other hospitals disregared when I mentioned them.
From that moment up to today Erin has and still is going through so much. Both her feet are now fixed like golf clubs and her hand has gone into spasm, not 1 doctor knows why or how to help us. She's bum shuffling everywhere and needs alot of help.The biggest battle we are facing now is she can't swallow, her throat closes up and she can't breathe properly.I t's frightening for us all and waiting to get help. She's my hero, a real inspiration to all of us. Just hoping the right help comes along soon.