Jessica R's quilt    (Quilt Completed)

Thank you

Jessica received her quilt yesterday. I seriously cannot put into words how fantastic the quilts are that you all have put so much effort into. Thank you all so much from the bottom of my heart, the quilt will travel with us and keep Jessica warm and comfortable throughout her hospital stays 😊 again! Thank you xxxx

Finished photos

Individual squares

Card

Stitched by: Nicola Bailey

Biography

At five days old the midwife suggested Jessica should be looked at by the hospital as she was a little concerned about her colour. Before I knew it I couldn't get near to Jessica as she was surrounded by doctors and nurses later to be told she had a large ASD & VSD and was in heart failure that would require open heart surgery. Whilst awaiting surgery we had the results from her heel prick test which confirmed a diagnosis of Cystic Fibrosis. Jessica was failing to thrive and was taking at least 8 medicines per day. Some for her heart failure and some for Cystic Fibrosis. The latter she will take for the rest of her life, which at the moment is 20 tablets at night and variable amounts during the day.

Whilst awaiting her heart surgery Jessica was admitted to hospital and then transferred to Birmingham children's hospital as she was in respiratory failure. At our local hospital, Jessica is very well known mainly for her personality but also because for the last 7 years she has been admitted to hospital for 2 weeks at least 6 times per year. Jessica has to do chest clearance 2-3 times per day consisting of inhalers, nebulisers and chest vibrations. The latter can be anything from a vibration plate to LOTS of trampolining. What I have written here to me seems very matter of fact for an extremely stressful 7 years but my princess is a fighter and we will brush off Cystic Fibrosis as much as humanly possible in order for Jessica to live as normal a life as she can.