LoveQuiltsUK - Alice L's quilt

Alice L's quilt (Quilt Completed)

Born:	2000
Illness:	CASK gene mutation
Theme: Disney Characters (all) Quilt delivered: 11th May 2017

Thank you

I can't thank you all enough for Alice's quilt. It arrived this morning and she is now snuggled up underneath it in bed x

Finished photos

Quilted by: Carol

Individual squares

Stitched by: Abi (+) Submitted: Nov 2016	Stitched by: Bethea Bradley (+) Submitted: Mar 2017
Stitched by: Debbie May (+) Submitted: Apr 2017	Stitched by: Diana Lettice (+) Submitted: Feb 2017
Stitched by: Eileen (+) Submitted: Dec 2016	Stitched by: Elaine (+) Submitted: Apr 2017
Stitched by: Jenny Elkington (+) Submitted: Jan 2017	Stitched by: Jill Smith (+) Submitted: Feb 2017
Stitched by: Joanne (+) Submitted: Apr 2017	Stitched by: Lisa (+) Submitted: Feb 2017
Stitched by: Lisa Toner (+) Submitted: Nov 2016	Stitched by: Paula Dewar (+) Submitted: Feb 2017
Stitched by: Rosemary Binnie (+) Submitted: Feb 2017	Stitched by: Rosie Timperley (+) Submitted: Apr 2017
Stitched by: Sadie Wishart (+) Submitted: Feb 2017

Fabric

Card

Stitched by: Sandra

Biography

During Alice's first few weeks of life her head circumference appeared to not be growing and by 5 week old she was measured below the 0.4th percentile. This began her journey and she was quickly diagnosed as having Microcephaly. Alice wasn't hitting any of the usual milestones and began lots of diagnostic tests. As Alice grew older her list of conditions began to grow but it took geneticists until she was 12 to discover that Alice had the rare CASK gene diagnosis.

Alice is non verbal, on a 20 hour continuous feed and needs help in every area of her life. This year has been particularly difficult with Alice spending a lot of time in hospital following having to have open surgery twice in just 5 days which caused her to spend time in PICU and her digestive system to stop working.