I'm not sure how to summarise his life but here my best shot! Rory was born weighing in at 1lb 13oz, he arrived 16 weeks before his due date.
The days, weeks and months that followed were fraught with complications and medical emergencies. He visited several hospitals, had numerous surgeries as well as being too unwell for some. However after battling in the NNU for 7 long months he was finally allowed home to his loving parents.
This is where Rory's journey really began, being on 24 hoour oxygen made things complicated and having nearly no immune system also caused issues. At 10 months he caught Bronc and was readmitted for 7 weeks in isolation. At this point it was clear he wasn't developing as he should and this needed further investigation. He was in and out of hospitals with chest infections until he finally came off oxygen at the age of 3. Sadly then his gasto system decided to shut down, he was in agony 24 hours a day unable to eat or process any food or fluid. He spent nearly 3 months in 3 hospitals trying to get the the root of his condition. He now has a strict diet which has meant he lives relatively pain free. However recently we have had a few issues which have lead us back to being admitted to the local children's ward. He has had over 120 admissions to our local hospital alone. Initially Rory was on 32 doses of medication a day - this is now down to zero due to diet and therapy, although he does need some PRN.
Rory is a very happy outgoing 5 year old who attends our local school with the support of a TA. He loves the company of other children and is very cheery.