Grace was diagnosed with Cystic Fibrosis on her heel prick test done shortly after birth. This came as a complete shock to us and turned our family upside down. We keep Grace as well as we can with her daily routine of medications, physiotherapy, exercise and nebulisers. She has unfortunately had spells in hospital needing intravenous antibiotics, with her last stay lasting 3 1/2 weeks.
She has to attend hospital clinic appointments and regularly has bloods taken, scans and x-rays done, all to monitor how she is doing. Despite all of this she is a very happy and sociable little girl who lives every day to the full.