Thank youRyan is so happy with his fantastic quilt, we cannot thank everyone enough, thank you to all the ladies who took time to make his squares (being a stitcher I know the time and effort that goes in to each and every one!!!) a special thank you to Leanda for the beautiful card, obviously a huge thank you to Heather for putting together such a gorgeous quilt!!!! Ryan loved looking at each square and I can guarantee he will absolutely treasure his quilt. Thank you so much to everyone of the team and as always to Kat and Gaynor for all the hard work to make these quilts happen for families that need them xxxxxxxx
|
BiographyRyan was born after a traumatic birth and didn't breath straight away. After 6 days in hospital we were able to take him home. He always had feeding issues and sickness but was generally a happy baby and met his milestones.
When Ryan started infant school, it was picked up that he had mild learning difficulties. He was in a special "rainbow" group and had an I.E.P in place for learning.
During his time at Junior school, his learning difficulties became more apparent. He really struggled with reading and writing and took no interest in reading books, but loved to be read to.
He suffered with terrible sickness which I kept going back to the doctors but got no answers. He was always tired and lethargic and was always anxious, distracted in class, biting his clothes etc.
During this time, Ryan's younger brother Riley (a proud owner of his own Love Quilt!) was born with an incurable heart condition. Riley had open-heart surgery that affected Ryan deeply as he had weeks at a time seeing his little brother in hospital and being away from me. This all took its toll on Ryan's fragile health.
With support from school we got access to the M.A.T team, a counsellor for Ryan and proper support at school where dyslexia was picked up. The doctors diagnosed gastro-osphegal reflux and prescribed medication. This didn't prevent the sickness. After process of elimination as a family, we suggested a gluten intolerance to the doctor and Ryan now has to follow a strict gluten free diet.
Other diagnosis of A.D.H.D, asthma, learning difficulties and anxiety and depression have followed. We are currently awaiting results of genetic tests to see if Ryan has the same Chromosome disorder that his younger brother has just being diagnosed with.
When Ryan began Senior school, his problems got a lot worse. Chronic bullying destroyed his confidence and made me fear for his mental health. The total lack of S.E.N support and bullying made me remove him from the school as his depression was terrible.
We are now considering full time home schooling, we tried before but was advised due to all his special needs that mainstream would help more and an educational psychologist be provided. (We are still waiting for this to happen!). We enrolled him at a new school with a health plan in place. However, Ryan just cannot cope in mainstream with all his health problems and lack of S.E.N support.
He has pains in his joints that affect his mobility and sensory issues that make the environment overwhelming.
Despite all his complex issues, Ryan is a fantastic son, so gentle and loving. We are so proud of him and I know his quilt will be a firm favourite to help comfort him on his darker days xxx
|
