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LoveQuiltsUK - Oscar L's quilt

Oscar L's quilt    (Quilt currently being assembled)

Born:November 2011
Illness: Cerebral palsy

Theme: Cartoon Characters

Quilt currently being assembled
Photo of Oscar L

Theme details

Cartoon Characters - Backfilled quilt



Biography

Oscar was born at home 1 week before his due date. Straight away he struggled with feeding, breastfeeding was impossible as he couldn't latch on. I tried bottles but milk would come back through his nose. He failed his newborn hearing test so was referred to an audiologist. At 4 months, he saw a pediatrician. When he had examined Oscar he said he would refer him to an ENT and geneticist as his facial characteristics could point to a genetic problem. He has a small chin, low set ears, a stridor etc. He is also prescribed a high calorie milk as he was failing to gain weight. I had to take him weekly to be weighed, it was during a weigh in that his health visitor had concerns about his development and his left hand was bunched up into a fist and floppy. I then spoke to the pediatrician who referred Oscar for a brain scan which resulted in his first diagnosis of cerebral palsy 3 weeks before his first birthday. His second diagnosis was in the January 22q11 deletion syndrome (2nd most common genetic condition after downs) and something I had never heard of!! ENT reviewed him for his noisy breathing & nasal regurgitation, the noisy breathing should improve itself as he grows. They then referred him onto the cleft team who diagnosed a sub-mucoslal cleft palate. He had his first palate repair Oct 2016 and will probably need a further operation sometime this year.
Audiology were testing his hearing every 3 months and finally fitted him with hearing aids when he was 15 months old. Since then he is under the care of physio, orthotics, dietitian, respiratory, orthoptics, speech and language, cleft surgeon, ENT, audiology, and occupational health.

He is now 5 and attends a specialised school where he is thriving. His speech still has a long way to go but at school they use total communication picture boards & signing which is helping ease his frustrations.



Patterns


1.Stitcher: Nicola, Elland, UK
Received

2.Stitcher: Ashlea McNamara, Croydon, England
Received

3.Stitcher: Kellyanne, Dundee, UK
Received

4.Stitcher: Kirsty Edgcumbe, Haverhill, Suffolk , UK
Received

5.Stitcher: Nicola, Elland, UK
Received

6.Stitcher: Kirsty Edgcumbe, Haverhill, Suffolk , UK
Received

7.Stitcher: Alison Wells, West Yorkshire, UK
Received

8.Stitcher: Lou Lou, Sweden
Received

9.Stitcher: Leanne Malcolmson, Romsey, UK
Received

10.Stitcher: Emma, Stevenage, UK
Received

11.Stitcher: Anne, Sandefjord, Norway
Received

12.Label Stitcher: Sandra, Shefford, England
Received


Squares received

Cross stitch square for Oscar L's quilt
Stitched by: Sandra
Submitted: Feb 2017

Cross stitch square for Oscar L's quilt
Stitched by: Nicola
Submitted: Jul 2014

Cross stitch square for Oscar L's quilt
Stitched by: Ashlea McNamara
Submitted: Aug 2014

Cross stitch square for Oscar L's quilt
Stitched by: Kellyanne
Submitted: Nov 2014

Cross stitch square for Oscar L's quilt
Stitched by: Kirsty Edgcumbe
Submitted: Dec 2014

Cross stitch square for Oscar L's quilt
Stitched by: Nicola
Submitted: Jun 2015

Cross stitch square for Oscar L's quilt
Stitched by: Kirsty Edgcumbe
Submitted: Apr 2016

Cross stitch square for Oscar L's quilt
Stitched by: Alison Wells
Submitted: May 2016

Cross stitch square for Oscar L's quilt
Stitched by: Lou Lou
Submitted: May 2016

Cross stitch square for Oscar L's quilt
Stitched by: Leanne Malcolmson
Submitted: Sep 2016

Cross stitch square for Oscar L's quilt
Stitched by: Emma
Submitted: Sep 2016

Cross stitch square for Oscar L's quilt
Stitched by: Anne
Submitted: Nov 2016


Card

Card for Oscar L
Stitched by: Krystie

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