Fenton C's quilt (Quilt Coming Soon)
Fenton loves bright colours such as orange, yellow, pink and turquoise blue. He loves long walks on a sunny day in the forest, rides on a steam train, sailing and animals.
Fenton was born with no problems until he was 12 hours old. I was told he was 'grunting' and needed to go to special care. A few hours after that I was told he'd had to be intubated and was unlikely to survive even though they didn't know what was wrong. At 2 days old he started having seizures. Brain scans showed he'd had a stroke. A second brain scan showed what they though was hemimegalencephaly. 8 months down the line another brain scan show they had made a mistake and what had actually happened was a bilateral perinatal stroke. This has left Fenton with quadriplegic cerebral palsy, severe refractory epilepsy and cortical visual and hearing impairments. He has had to have bilateral Femoral Osteotomy, numerous brain scans, EEG's, he also has sleep hypopnea and apnea, and has seizures day and night. He is now waiting for surgery to have a VNS fitted.