This is Eloise with her quilt, she is chuffed to bits with it..! She noticed her name straight away and said "it's mine!" 😍 it really is beautiful, so much hard work and effort has gone into it. A big thank you to all involved making it, such a lovely thing to do! Her favourite patch is the white cat.
Eloise has suffered from tics and jerks for the majority of her life, since the age of 18months, she is now 14. At the age of 9, Eloise was placed in the care of her older sister. Since then, the tics and jerks were diagnosed as a movement disorder but soon progressed into partial seizures. Eloise had her first tonic clonic seizure at the age of 11. It took nearly 2 years of investigating to finally get a diagnosis of 'progressive myoclonic epilepsy'. Eloise is on seizure control medication which helps sometimes. She has thyroid problems which make her gain and loose weight often. So the medication dose needs reviewing constantly. She now attends a special needs school, and for the past 4 years has started to talk and can now string a sentence together. Eloise can go days with no major problems (apart from behaviour issues due to her past) but then weeks will pass where she seems to deteriorate (lots of seizures, loss of appetite, not talking, always tired, can't make it to the toilet, tearful).
Despite all this, Eloise wears a smile on her face, more days than not! Everyone she meets comments on her smile and how she lights up the room!