Alfie M's quilt (Quilt Completed) |
| Born: | 2013 |
| Illness: | Complex epilepsy severe GDD
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Theme: Sealife
Quilt delivered: 28th Oct 2017 |
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Thank youA massive thank you for Alfie's quilt....it's truly beautiful and the colour matches his gorgeous eyes. Alfie is immobile and cannot communicate but his smile says it all his little sister is already trying to pinch it. Such a wonderful thing you all do. Thank you from all of us xx
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Finished photos
Quilted by:
Helle
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Individual squares
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Stitched by:
Anne
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Submitted: Jun 2016
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Stitched by:
Anne
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Submitted: May 2017
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Stitched by:
Carol Ayling
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Submitted: Jul 2016
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Stitched by:
Diana Tanner
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Submitted: Apr 2016
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Stitched by:
Karen
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Submitted: May 2015
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Stitched by:
Kayleigh Oldfield
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Submitted: Mar 2016
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Stitched by:
Kim Lawrence
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Submitted: Apr 2015
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Stitched by:
Leanne Malcolmson
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Submitted: Sep 2016
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Stitched by:
Megan
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Submitted: May 2017
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Stitched by:
Nicola
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Submitted: May 2016
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Stitched by:
Sandra
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Submitted: Jan 2015
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Stitched by:
Sandra
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Submitted: Jul 2017
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Card
Stitched by: Beth Wallasey |
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BiographyAlfie waa born seven weeks early and started having seizures. After lots of investigations he was found to have epilepsy. Also, neurologically his prognosis was poor. The first year he was in and out of hospital with seizures and tried on multiple meds as well as the ketogenic diet. After he turned one in May 2014 he spent four weeks in HDU due to heavy seizures.
Later that year we got some control and Alfie has a peg fitted due to it being unsafe to wallow. We had ten months seizure free and Alfie learnt to smile. Then he had a year struhhling with nihht time seizures where he would scream and cry.
After a year a new med was started which helped. However his normal seizures re started daily until up to last week where he was having up to 8 seizures a day. Alfie cannot do anything for himself...he is severely physically and mentally disabled...he cannot sit, stand, roll or hold his head up. He cannot communicate except for his amazing smile. Currently over last two weeks since admission to hospital following hourly seizures a new med was started and we have had an improvement.
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