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LoveQuiltsUK - Alfie M's quilt

Alfie M's quilt    (Quilt currently being assembled)

Born:May 2013
Illness: Complex epilepsy severe GDD

Theme: Sealife

Quilt currently being assembled
Photo of Alfie M

Theme details

Sealife - Backfilled quilt



Biography

Alfie waa born seven weeks early and started having seizures. After lots of investigations he was found to have epilepsy. Also, neurologically his prognosis was poor. The first year he was in and out of hospital with seizures and tried on multiple meds as well as the ketogenic diet. After he turned one in May 2014 he spent four weeks in HDU due to heavy seizures.

Later that year we got some control and Alfie has a peg fitted due to it being unsafe to wallow. We had ten months seizure free and Alfie learnt to smile. Then he had a year struhhling with nihht time seizures where he would scream and cry.

After a year a new med was started which helped. However his normal seizures re started daily until up to last week where he was having up to 8 seizures a day. Alfie cannot do anything for himself...he is severely physically and mentally disabled...he cannot sit, stand, roll or hold his head up. He cannot communicate except for his amazing smile. Currently over last two weeks since admission to hospital following hourly seizures a new med was started and we have had an improvement.



Patterns


1.Stitcher: Sandra, Shefford, England
Received

2.Stitcher: Kim Lawrence, Bedworth, England
Received

3.Stitcher: Karen, Hereford, England
Received

4.Stitcher: Kayleigh Oldfield , Morley, Leeds, UK
Received

5.Stitcher: Diana Tanner, Perth WA, Australia
Received

6.Stitcher: Nicola, Elland, UK
Received

7.Stitcher: Anne, Great Oakley, UK
Received

8.Stitcher: Carol Ayling, Copthorne, UK
Received

9.Stitcher: Leanne Malcolmson, Romsey, UK
Received

10.Stitcher: Anne, Great Oakley, UK
Received

11.Stitcher: Megan, Victoria, Canada
Received

12.Label Stitcher: Sandra, Shefford, England
Received


Squares received

Cross stitch square for Alfie M's quilt
Stitched by: Sandra
Submitted: Jul 2017

Cross stitch square for Alfie M's quilt
Stitched by: Sandra
Submitted: Jan 2015

Cross stitch square for Alfie M's quilt
Stitched by: Kim Lawrence
Submitted: Apr 2015

Cross stitch square for Alfie M's quilt
Stitched by: Karen
Submitted: May 2015

Cross stitch square for Alfie M's quilt
Stitched by: Kayleigh Oldfield
Submitted: Mar 2016

Cross stitch square for Alfie M's quilt
Stitched by: Diana Tanner
Submitted: Apr 2016

Cross stitch square for Alfie M's quilt
Stitched by: Nicola
Submitted: May 2016

Cross stitch square for Alfie M's quilt
Stitched by: Anne
Submitted: Jun 2016

Cross stitch square for Alfie M's quilt
Stitched by: Carol Ayling
Submitted: Jul 2016

Cross stitch square for Alfie M's quilt
Stitched by: Leanne Malcolmson
Submitted: Sep 2016

Cross stitch square for Alfie M's quilt
Stitched by: Anne
Submitted: May 2017

Cross stitch square for Alfie M's quilt
Stitched by: Megan
Submitted: May 2017


Card

Card for Alfie M
Stitched by: Beth Wallasey

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