Tahlia-Annikki's quilt    (Quilt Completed)

Thank you

It is beautiful, Tahlia had the biggest smile on her face when I showed it to her. She's fallen asleep with it. I can't thank everyone involved enough. x

Finished photos

Individual squares

Fabric

Biography

Tahlia was born at 40 weeks and seemed a "normal" baby. when the Health visitor visited us when she was 2 weeks old Tahlia started jerking and the health visitor thought that it should be monitored. I had noticed it a few more times but babies can be very jerky anyhow and thought I was being over worried.

At 6 weeks old during Tahlia's check with the GP she was very jerky so the GP decided that we should get it checked out by a consultant at the hospital. After a few months of appointments with the consultants and physios she was given a diagnosis of Cerebral Palsy. The same diagnosis her brother Harlum has.

During the following months we started having appointmants for both Harlum and Tahlia at the same time and it wasn't long before the diagnosis started to be questioned, as it's rare for sibling to both have cerebral palsy especially as Tahlia seemed healthy when she was born.

In September 2010 it was decided that they had a genetic condition similar to CP and Harlum underwent further investigations to determine what condition they had, these included skin and muscle biopsy, lots of blood tests repeated MRI scans of head and spine and a lumber punture.

In June this year (2011) we got the results back and so far we still are unclear what diagnosis they have, Harlum has since had more tests done.

What is clear is that they both have the same condition and we hope to find a diagnosis and appropiate treatment in the future, until then we are uncertian what the future holds for them, but they carry on smiling.