Emma arrived on her due date whilst living in Germany and there was no problems with the labour. My beautiful baby girl weighed 7lbs exactly and had lots of black hair.
At two weeks old, I became concerned that she may have a chest infection as she sounds very wheezy. Due to us shortly moving back to the UK and being in between Dr's, I thought it was best to get her checked over. It was a bank holiday in Germany that day and I along with my 2 year old son and husband took Emma to the German hospital expecting them to say she had a chest infection. The Dr became concerned that Emma hadn't put her birth weight back on and she was two weeks old and admitted her for further testing. The same afternoon the doctors kept asking if she had the heel prick test which she did but no results came back. The following day Emma was put through blood tests, ultrasounds and X-rays. The Dr mentioned a condition called Cystic Fibrosis and we didn't have a clue what that fully meant.
The following day will stay with us forever, with our house packed up and our belongings on way to England, we were stuck in hospital and hit with the devastating news that our perfect baby girl had a the life shortening disease Cystic Fibrosis. Our world crumpled. The hospital staff were amazing and did all test and translated all reports for the doctors in the UK. They also tested our son using the sweat test which we were relieved to learn he didn't have CF!
Emma's daily routine consists of physiotherapy twice daily to help keep her chest clear of mucus, 3 different nebulised Antiobiotics and up to 20-25 creon capsule to help absorb food as her body doesn't release the enzymes to break down fats and process them.
Emma is a strong resilient girl and never lets CF hold her back... bouncing back stronger with each new hurdle or hospital admission. Emma is 6 now and to date has had 5 hospital admission, numerous X-rays and bronchoscopy and is unfortunately showing signs of scarring on her lungs with is irreversible and permanent damage. There is currently no cure for Cystic Fibrosis.