William C's quilt    (Quilt Completed)

Thank you

William’s quilt arrived on Friday and it’s amazing! Thank you so much to everyone that has worked on it and given their time.

He’s just been for a weekends respite at our local hospice and took it with him to show off! It will be great to take with him on hospital stays and help keep him warm at night.

Thank you all for the work you do bringing a bit of sunshine into families’ lives.

Finished photos

Individual squares

Fabric

Card

Stitched by: Alison Grogan

Biography

William was born with several brain malformations as a result of a faulty gene. Since birth William has been tube fed and experienced frequent daily seizures. William is unable to talk, walk or move independently but is generally happy and has a big smile. He loves to lie down more than anything else!

William has virtually no vision but enjoys listening to music and familiar voices.

Last year, unrelated to his other diagnoses, William developed Type 1 diabetes and is now insulin dependent. This has posed a big challenge as William has no awareness of when his blood sugars are too high or too low and we rely on an insulin pump and continuous glucose monitoring system to help keep William safe.

As William has grown older his respiratory health has become more difficult to manage but with an intensive daily program of nebulisers, chest physio and frequent suction he has managed to mostly stay well.

William is a very gentle soul who endears everyone who meets him. He is very calm and relaxed and his smile lights up a room. He is so brave and has taught us so much about love and what's important in life. We are so honoured to have him in our family.