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LoveQuiltsUK - Cody-John's quilt

Cody-John's quilt    (Quilt Closed)

Born:November 2006
Illness: Down syndrome

Theme: Sea life

Date opened: 7th Oct 2017
Date closed: 7th Oct 2017
Deadline: 31st Jan 2018

Photo of Cody-John

Child Interests

Cody loves every Disney character, he also loves fis,h dolphins, and sharks. He has a real passion about shark boy and lava girl who are super heros to Cody.

His favourite colours are pink's and blues so much so he wanted a pink and blue wheelchair but they wouldn't let you have one.


Biography

I had three wonderful children, but I wanted to give my new partner a child. We had 16 miscarriages and I finally became pregnant and at 12 weeks when I went for tests I told the nurse that there was something wrong with my baby, they ran some tests and I decided I was going to keep her or him.

The test results came back a couple of days later - 13 to 1 for downs. I was then ordered to go to the hospital to speak with them about the situation - my answer was what situation, he's my baby he staying put. I was then given a load of spill about how poorly he would be and he wouldn't have quality of life. At 20 weeks we went for a scan and the woman went quiet. My heart stopped to think at this until the end of the clinic where we had to see a woman who is the screen coordinator who told me that my child would have no life, no hair, never be able to do anything for himself even to the fact that I might die myself - to be honest she put the fear of God in me.

I then had to go to another hospital for a scan at Birmingham Children's Hospital who were amazing in every way. I carried on with my pregnancy enjoying every single moment. Still at the back of my mind knowing my little boy could die.

Finally the day came and this most amazing beautiful baby boy was born at 10lb 11oz. Beautiful blonde hair and big blue eyes, I was the happiest mummy in the world. At 13 weeks Cody had his first heart operation and was told that he would need another one before the year is up. Around 18 months, we noticed that Cody was having trouble hearing. So he was referred for a hearing aid. We also noticed he was starting to blank out.

But nothing was done until Cody was about four where again he went to Birmingham Children's Hospital. They diagnosed him with epilepsy and loss of hearing - Cody now has three types of epilepsy and he is also on the second stage of the Bahama hearing aid.

Around about seven, Cody's behaviour started to go off the wall, we even ended up getting a wheelchair for him because he got tired, also because he had meltdowns, sits on the floor and head-butts the floor. So because of the seizures I was struggling with him and telling everybody that that was something not quite right. It took a long time and finally we got a social worker that helped to get Cody diagnosed with Asperger's and ADHD. Cody is now on ADHD medicine and it's helping a lot.

Cody has constant ear infection's, he's also got perforated ears but he's always smiling, he's always happy and I love him to bits. I taught Cody to sign from when he was little but Cody loves to make his own signs up especially when it comes to chips and chocolate, and crisps.

Cody is now 10 and he'll be 11 in November. The last few months we've noticed he started to stutter, also we noticed that he started to repeat rude words over and over again. This doesn't change the fact that we love this little man so much this just makes me proud to know he's my son. Cody always tries to do what the other children are doing but sometimes it breaks my heart when his sat in his wheelchair and he's starting to get tired or his poorly or you know he's going to have a seizure and he looks at you with his big beautiful blue eyes and all you can do is just hold his hand. Cody takes his medication every day even though he hates it.



Patterns


1.Lickety stitch Lickity stitch starfish Stitcher: Leanda Vickers, Oldham , England
In Progress

2.Climbing goats dolphin at homeStitcher: Heather Joyce, Sandiacre, UK
In Progress

3.From files on Facebook, designed by Gemma Harris Pair of seahorses. Will make them pink and blue. Stitcher: Katie Lacy, Amersham, UK
In Progress

4.Jacobean sea friends 2. Jelly fishStitcher: Miss Debbie Elkington, Boston, Lincs, UK
In Progress

5.Jacobean sea friends 2. SeahorseStitcher: Jenny Elkington, Boston, UK
In Progress

6.Maria Diaz SealifeStitcher: Eileen, Newcastle, UK
In Progress

7.Jacobean Sea Friends SharkStitcher: Jan , Hull, UK
In Progress

8.Crab by Ann Logan Red crabStitcher: Jan S, Enid, Oklahoma, USA
In Progress

9.Jacobean Sea Friends 2 FishStitcher: Rosemary Binnie, Macclesfield, UK
In Progress

10.Cross stitcher summer special Two dolphins in an circleStitcher: Bethea Bradley, Bangor, Northern Ireland
In Progress

11.Shark from April 2008 Cross Stitcher p46 Stitcher: Naomi Lucas, King's Lynn, UK
In Progress

12.Label Stitcher: Elaine Dixon, Athens, Greece
In Progress


Squares received

None yet. (Quilt opened on 7th Oct 2017)


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