Bethany was born in March 2013 best day ever. I didn't realise any signs of her illness in the weeks running up to her being diagnosed apart from when I kissed her she was a little salty but I thought that was just sweat. A few days later there was a knock on the door early morning which woke us up as we weren't expecting anyone. I will never forget this day it was a midwife and a health visitor and a nurse I knew there wasn't something right when I opened the door and they came in and said Bethany is suspected to have cf.
We spent the whole day in the hospital having numerous tests and talks about what cf is and what the future held for us. We left that day minds blurred with our nearly 4 week old, a load of medication and a little information. A few weeks after her diagnoses Bethany stopped breathing and was rushed to hospital - thankfully she was okay. Bethany is now 4 and has had far to many hospital appointments, tests, blood tests, admissions, medications, lung biopsys and infections for us to even keep track of, with the most recent one being her worst. She had a longline which had failed so she was having ivs through cannulas 4 times a day and a syringe driver. She was having to get a new cannula every time it came to her having her next dose off antibiotics, as you can imagine this was very traumatic for Bethany and has left her with ptsd and anxiety whenever hospital is mentioned. To the point were she is having to be sedated to even get her routine blood tests now so it is less traumatic for her.