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LoveQuiltsUK - Robyn L's quilt

Robyn L's quilt    (Quilt Closed)

Born:July 2014
Illness: Dystonic Quadraphonic Cerebral Palsy

Theme: Rainbows and butterflies

Date opened: 17th Jan 2018
Date closed: 21st Jan 2018
Deadline: 31st May 2018

Photo of Robyn L

Child Interests

Robyn’s favourite colour is bright pink and red! But she loves all colours and especially loves rainbows! Robyn saw her first rainbow in the sky a few months ago it was magical to watch her trying to understand it!
Playing dolls (in her own way) with our help is her favourite thing to do! She loves the pretty Disney dolls with their beautiful big eyes and recently loves Poppy the troll with her funny fluffy hair!!
Robyn also loves the garden- listening to all the birds and in the summer watching the bees and butterflies buzzing about.
She is very musical and loves us to help her play drums or shake bells. Music is very calming for Robyn so we listen to music all day long. She’s especially fond of rock music!!!


Robyn was born by emergency c section after Mum had felt no movements. She was extremely anaemic and Doctors fought for hours to save her life. There had been a foetal maternal hemorrhage (she had lost a lot of her blood into my bloodstream) resulting in hypoxic ischemic encephalopathy (HIE) which is oxygen starvation to the brain. Robyn had an MRI at 3 days old confirming the devastating news of brain damage. After a 2 week stay in SCBU Robyn came home feeding orally.

We weren’t given a diagnosis straight away it was very much wait and see how she developed. At 9 weeks after constant screaming Robyn was diagnosed with silent reflux and we met her paediatrician who first mentioned cerebral palsy.

Robyn fights hard every day and develops at her own pace. She cannot roll, sit unaided, walk or talk and cannot use her hands. But she is amazingly resilient little girl who communicates with us through a combination of body movements, vocal noises and by flashing her cheeky smile! She loves to stand with support and has recently (with help) been able to grasp things in her hands like pens or paintbrushes! She has started to vocalise a few words such as yeah, no, eyes, hair, hand (when playing dolls!) and water.

Robyn feeds orally but is due to have an operation to have a PEG fitted but this will just be for medication and fluids.


1.Climbing goat designs Rainbow butterflyStitcher: Jill Smith, Taunton, England
In Progress

2.Stitching the night away. Brush stroke butterflyStitcher: Jenny Elkington, Boston, UK
In Progress

3.Stitch Two butterflies in bright pink one above the otherStitcher: Nicola, St Albans, UK
In Progress

4.From Etsy - A Climbing Goat Design. The Paint Splatter Butterfly.Stitcher: Kirsty Smith, Bowburn, UK
In Progress

5.Awsomepatternstudio ButterflyStitcher: Nancy Lowe, Tamworth, UK
In Progress

6.Climbing Goat Designs Rainbow MaypoleStitcher: Rosemary Binnie, Macclesfield, UK
In Progress cards free chart.pdf A selection of butterflies from a free pdf by linked together by a rainbow Stitcher: Pat Brown, Fareham, England
In Progress

8.Rainbow with a heart at each internet pattern.Stitcher: Julie, Portgordon, Scotland
In Progress

9.DMC Lili Loves Rainbows - a little girl looking at a rainbow.Stitcher: Leanda Vickers, Oldham , England
In Progress

10.A kit. Tatty Teddy with a Heart and some butterfliesStitcher: Debbie May, Worthing, West Sussex, UK
In Progress Butterflies in rainbow coloursStitcher: Emily Baker, Rhyl, Denbighshire, Wales
In Progress

12.Label Stitcher: Jeanne, Texas, USA
In Progress

Squares received

None yet. (Quilt opened on 17th Jan 2018)

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