Robyn was born by emergency c section after Mum had felt no movements. She was extremely anaemic and Doctors fought for hours to save her life. There had been a foetal maternal hemorrhage (she had lost a lot of her blood into my bloodstream) resulting in hypoxic ischemic encephalopathy (HIE) which is oxygen starvation to the brain. Robyn had an MRI at 3 days old confirming the devastating news of brain damage. After a 2 week stay in SCBU Robyn came home feeding orally.
We weren’t given a diagnosis straight away it was very much wait and see how she developed. At 9 weeks after constant screaming Robyn was diagnosed with silent reflux and we met her paediatrician who first mentioned cerebral palsy.
Robyn fights hard every day and develops at her own pace. She cannot roll, sit unaided, walk or talk and cannot use her hands. But she is amazingly resilient little girl who communicates with us through a combination of body movements, vocal noises and by flashing her cheeky smile! She loves to stand with support and has recently (with help) been able to grasp things in her hands like pens or paintbrushes! She has started to vocalise a few words such as yeah, no, eyes, hair, hand (when playing dolls!) and water.
Robyn feeds orally but is due to have an operation to have a PEG fitted but this will just be for medication and fluids.