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LoveQuiltsUK - Thomas S's quilt

Thomas S's quilt    (Quilt Closed)

Born:October 2015
Illness: Dystonic cerebral palsy

Theme: Rainbows and stars

Date opened: 6th Jan 2018
Date closed: 8th Jan 2018
Deadline: 31st May 2018

Photo of Thomas S

Child Interests

Thomas enjoys watching Spongebob Squarepants and Paw Patrol. His favourite toy is the Fisher price Beatbo. He likes bright colours and is often dressed in rainbow coloured clothes. Our family motto is "When it rains, look for rainbows, when it's dark, look for stars" Thomas is our rainbow and stars!


Thomas was born at home not breathing. He required immediate resuscitation and was intubated on arrival at hospital. He was then given cooling therapy for 72 hours. He did not take his first unassisted breath until he was 5 days old. We were told within hours that he might not survive but he proved to be a fighter. An early mri showed that he had sustained extensive brain damage and it was clear from early on that he had abnormal movements.

He was born with no suck or swallow so he has been tube fed since birth. He has severe reflux and is failure to thrive with a tiny weight at just over 2 years old. He has had two surgeries, to place a gastrostomy and a failed fundoplication. We expect more surgery this year to resolve an obstructive airway. Thomas is severely delayed physically, unable to roll or sit or use his hands with good effect. He shows signs of being alert and of reasonable understanding.

So far he has been fortunate to have experienced remarkable good health given his condition but he is at high risk of chest infections and sudc. He is generally a happy child who loves observing the world around him.


1.My own design- the saying 'when it rains look for rainbows, when it's dark look for stars' decorated with stars and rainbows.Stitcher: Rebecca, Kettering, Northants, UK

2.Cross Rainbow starStitcher: Becky Keith, Worksop, UK
In Progress

3.Climbing Goats Rainbow MaypoleStitcher: Eileen, Newcastle, UK
In Progress

4.New Stitches November 2012 Seven stars in rainbow coloursStitcher: Sue Torode, Farnborough, UK

5.LittleHomeMades@Etsy Rainbow with colours running down to form stars.Stitcher: Lyn , Doncaster, UK
In Progress

6.Own design Rainbow heartStitcher: Laura, Thetford, UK

7.3 yellow stars with words...Twinkle Twinkle little star Stitcher: Leanne Malcolmson, Romsey, UK

8.Etsy - Climbing Goat Designs Magic Wand with Rainbow StarsStitcher: Loraine, Perth W.A, Australia

9.Climbing goat designs etsy STAR MADE up with BRIGHTLY coloured starsStitcher: Valerie Parnell, Dundee, UK
In Progress

10.Moon and Star with rainbow coloured swirl patterns inside.Stitcher: Nikki Philipps, Chesham, UK
In Progress

11.Sand, sea & cross stitch Heart made up of stars in rainbow coloursStitcher: Merrilie, Corby, UK
In Progress

12.Label Stitcher: Cath, Nottingham, UK
In Progress

Squares received

Cross stitch square for Thomas S's quilt
Stitched by: Rebecca
Submitted: Mar 2018

Cross stitch square for Thomas S's quilt
Stitched by: Sue Torode
Submitted: Jan 2018

Cross stitch square for Thomas S's quilt
Stitched by: Laura
Submitted: Mar 2018

Cross stitch square for Thomas S's quilt
Stitched by: Leanne Malcolmson
Submitted: Mar 2018

Cross stitch square for Thomas S's quilt
Stitched by: Loraine
Submitted: Apr 2018


Card for Thomas S
Stitched by: Heather Jepson

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