Thomas S's quilt    (Quilt Completed)

Thank you

Thomas's quilt arrived today and it is absolutely beautiful! Thomas enjoyed looking at all the bright colours and snuggling underneath it. It will be a cherished heirloom.

Finished photos

Individual squares

Card

Stitched by: Heather Jepson

Biography

Thomas was born at home not breathing. He required immediate resuscitation and was intubated on arrival at hospital. He was then given cooling therapy for 72 hours. He did not take his first unassisted breath until he was 5 days old. We were told within hours that he might not survive but he proved to be a fighter. An early mri showed that he had sustained extensive brain damage and it was clear from early on that he had abnormal movements.

He was born with no suck or swallow so he has been tube fed since birth. He has severe reflux and is failure to thrive with a tiny weight at just over 2 years old. He has had two surgeries, to place a gastrostomy and a failed fundoplication. We expect more surgery this year to resolve an obstructive airway. Thomas is severely delayed physically, unable to roll or sit or use his hands with good effect. He shows signs of being alert and of reasonable understanding.

So far he has been fortunate to have experienced remarkable good health given his condition but he is at high risk of chest infections and sudc. He is generally a happy child who loves observing the world around him.