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LoveQuiltsUK - Molly-Rose's quilt

Molly-Rose's quilt    (Quilt Closed)

Born:May 2013
Illness: Cystic Fibrosis

Theme: Dance

Date opened: 14th Feb 2018
Date closed: 15th Feb 2018
Deadline: 27th Jun 2018

Photo of Molly-Rose

Theme details

Dance - Ballet, tap, street



Child Interests

Molly-Roses favourite colours are green and purple and pink.
She loves mythical creatures such as mermaids, fairies and flying unicorns.
She also likes the cartoon pokemon characters.
Her favourite thing to do is to dance - any music, any time - you’ll always find her having a boogie.


Biography

My husband and I were identified as carriers of the Cystic Fibrosis gene after our 12-week scan and we knew from that day that we had a 1 in 4 chance of our baby being born with the condition.

At 7-days old we got confirmation of the diagnosis and have been under the care of the amazing team at the Royal Brompton ever since. The daily regime of medication and physio is the norm for us all and Molly-Rose takes it all in her stride. At 6-months old she was taken in for neurosurgery on her spine to untether her spinal cord and ensure normal growth of the spine.

Then at 10-months we found out that she had been born with a dislocated hip (hip dysplasia) that wasn’t picked up on the normal screening. 3 surgeries and 3 Spica casts later, the socket was reshaped and the hip placed back in nicely.
Now 3 1/2 years on her hip is growing well and we have just had sign off from her consultant that she can finally start gymnastics after piping on about it for 2 years.

She sees her care team more than most of her family and we are now transitioning care needs into school.

We strive to make sure she doesn’t feel different to others or like the odd one out. Every day is a new challenge and we never know how the next bug is going to hit her or what new medical or physio regime will come with it but she is such a strong willed little girl that she tells us how we’ll get through it.

And whilst we may not be able to control what her body is doing to her, we CAN and do ensure she is happy in whatever she does.



Patterns


1.Ellen Maurer Stroh Ballet GirlStitcher: Rosemary Binnie, Macclesfield, UK
Received

2.Flower Dance, sodastitch cross stitch chartStitcher: Louise B, Surrey, UK
In Progress

3."Highland Dancer" by Foxberry Cottage Crafts (from an old kit, colors changed) Highland dancer performing a sword danceStitcher: Jessica, Cambridge, ON, Canada
Received

4.The World of Cross Stitch - Issue 233 All dressed up by Lili of the ValleyStitcher: Debbie May, Worthing, West Sussex, UK
Received

5.A world of cross stitching magazine from 2012T Ballet dancer in a purple dressStitcher: Sue Torode, Farnborough, UK
In Progress

6.Lesley Teare Cute Baby Models Ballet dancerStitcher: Jan, Hull, UK
Received

7.Design Works Dancing Frogs - 2 quirky frogs on the dance floor!!Stitcher: Leanda Vickers, Oldham , England
In Progress

8.Lili of valley.com Dainty Dancer....Lili of the Valley Stitcher: Angela Lamb, Hounslow, UK
In Progress
all245@hotmail.com

9.CrossStitcher magazine September 2015 I will mirror the image to put two ballet dancers on the square. Titus and twirlsStitcher: Natalie Hardman, Lancashire , UK
In Progress

10.From cross stitch crazy/woxs (cant remember which one!) Sugar plum fairy/ballet dancerStitcher: Diane, Middlesex, UK
Received

11.Couple dancing Charleston in bright colours in abstract styleStitcher: Katie, Leicester, UK
In Progress

12.Label Stitcher: Pat Brown, Fareham, England
Received


Squares received

Cross stitch square for Molly-Rose's quilt
Stitched by: Pat Brown
Submitted: Mar 2018

Cross stitch square for Molly-Rose's quilt
Stitched by: Rosemary Binnie
Submitted: Apr 2018

Cross stitch square for Molly-Rose's quilt
Stitched by: Jessica
Submitted: Feb 2018

Cross stitch square for Molly-Rose's quilt
Stitched by: Debbie May
Submitted: Apr 2018

Cross stitch square for Molly-Rose's quilt
Stitched by: Jan
Submitted: Mar 2018

Cross stitch square for Molly-Rose's quilt
Stitched by: Diane
Submitted: Apr 2018


Card

Card for Molly-Rose
Stitched by: Beth Cotton

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