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LoveQuiltsUK - Molly-Rose's quilt

Molly-Rose's quilt    (Quilt Completed)

Born:May 2013
Illness: Cystic Fibrosis

Theme: Dance

Quilt delivered: 7th Aug 2018
Photo of Molly-Rose

Thank you

Molly-Rose's quilt turned up today and she absolutely loves it. It has now replaced theduvet on her bed. You can see the love that has gone into each and every stitch and seam. Cannot thank you all enough x



Finished photos


Photo of Molly-Roses quilt

Photo of Molly-Roses quilt

Photo of Molly-Roses quilt

Photo of Molly-Roses quilt


Quilted by: Leanda

Individual squares

Cross stitch square for Molly-Rose's quilt
Stitched by: Angela Lamb (+)
Submitted: Jun 2018

Cross stitch square for Molly-Rose's quilt
Stitched by: Debbie May (+)
Submitted: Apr 2018

Cross stitch square for Molly-Rose's quilt
Stitched by: Diane (+)
Submitted: Apr 2018

Cross stitch square for Molly-Rose's quilt
Stitched by: Jan (+)
Submitted: Mar 2018

Cross stitch square for Molly-Rose's quilt
Stitched by: Jessica (+)
Submitted: Feb 2018

Cross stitch square for Molly-Rose's quilt
Stitched by: Katie (+)
Submitted: Jul 2018

Cross stitch square for Molly-Rose's quilt
Stitched by: Leanda Vickers (+)
Submitted: May 2018

Cross stitch square for Molly-Rose's quilt
Stitched by: Louise B (+)
Submitted: Apr 2018

Cross stitch square for Molly-Rose's quilt
Stitched by: Natalie Hardman (+)
Submitted: May 2018

Cross stitch square for Molly-Rose's quilt
Stitched by: Pat Brown (+)
Submitted: Mar 2018

Cross stitch square for Molly-Rose's quilt
Stitched by: Rosemary Binnie (+)
Submitted: Apr 2018

Cross stitch square for Molly-Rose's quilt
Stitched by: Sue Torode (+)
Submitted: Apr 2018


Card

Card for Molly-Rose
Stitched by: Beth Cotton

Biography

My husband and I were identified as carriers of the Cystic Fibrosis gene after our 12-week scan and we knew from that day that we had a 1 in 4 chance of our baby being born with the condition.

At 7-days old we got confirmation of the diagnosis and have been under the care of the amazing team at the Royal Brompton ever since. The daily regime of medication and physio is the norm for us all and Molly-Rose takes it all in her stride. At 6-months old she was taken in for neurosurgery on her spine to untether her spinal cord and ensure normal growth of the spine.

Then at 10-months we found out that she had been born with a dislocated hip (hip dysplasia) that wasn’t picked up on the normal screening. 3 surgeries and 3 Spica casts later, the socket was reshaped and the hip placed back in nicely.
Now 3 1/2 years on her hip is growing well and we have just had sign off from her consultant that she can finally start gymnastics after piping on about it for 2 years.

She sees her care team more than most of her family and we are now transitioning care needs into school.

We strive to make sure she doesn’t feel different to others or like the odd one out. Every day is a new challenge and we never know how the next bug is going to hit her or what new medical or physio regime will come with it but she is such a strong willed little girl that she tells us how we’ll get through it.

And whilst we may not be able to control what her body is doing to her, we CAN and do ensure she is happy in whatever she does.


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