Noah H 2's quilt   (Quilt Completed) |
Born: | 2009 |
Illness: | NEurofibramitosis NF1 , brain tumours(optic nerve gliomas)
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Theme: Superheroes
Quilt delivered: 28th Jul 2018 |
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Thank youNoah’s quilt has arrived ! It is absolutely stunning! Noah says it’s amazing and loves all the superheroes on it even the back is just fabulous with KAPOW etc. Cannot thank you all enough
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Finished photos
Quilted by:
Heather
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Individual squares
Stitched by:
Angie
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Submitted: Jun 2018
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Stitched by:
C McDonald
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Submitted: Apr 2018
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Stitched by:
Heather
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Submitted: Apr 2018
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Stitched by:
Jan G
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Submitted: Feb 2018
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Stitched by:
Jill Smith
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Submitted: May 2018
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Stitched by:
Linda Cropper
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Submitted: Jun 2018
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Stitched by:
Lyn
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Submitted: May 2018
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Stitched by:
Michelle Beckett
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Submitted: May 2018
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Stitched by:
Rhiannon Hobbs
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Submitted: Jun 2018
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Stitched by:
Sandra
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Submitted: Mar 2018
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Stitched by:
Shirley
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Submitted: Mar 2018
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Stitched by:
Val Gilbert
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Submitted: Apr 2018
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Card
Stitched by: Hannah Garner |
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BiographyNoah developed cafe au lait patches on his skin at around 18 months then was subsequently diagnosed with the genetic condition NF1. He had all the associated issues that can come with it, Lisch nodes in eyes, speech and language delay. Routine eye test revealed a drop in vision so he had an MRI scan and on his 5th birthday was diagnosed and started chemotherapy for 18 months, he had a Hickman line and multple blood and platelet transfusions and hospital stays.
His vision was stable since end of treatment but has now deteriorated again so waiting for MRI. He has been super brave - never complaining and takes everything in his stride. He has also been diagnosed with ADHD so on medication to help.
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