Amine B's quilt   (Quilt Completed)
Amine's quilt has arrived! Thank you
Quilted by: Sandra (Beds)
Amine was diagnosed with CF at 2 weeks old from the heel prick test (newborn screening). During the first two weeks Amine was very symptomatic however no one knew or picked this up until the NB screening results came in. He lost a lot of weight...he was born weighing 4kg and within two weeks went down to 3kg. He was not able to keep his milk down as it contained fat which is something his stomach was unable to digest as it needed replacement enzymes. This is why Amine needs a medicine called Creon every time he eats foods which contain fats. He also has a lot of chest infections and has been admitted into hospital 9 times since birth.