Samuel W's quilt    (Quilt Completed)

Thank you

Hello, it's Sam's dad here. Mum is away on a training course at the moment so she can't reply till she's back online. I wanted to let you know that we have received Sam's "Mario Brothers" quilt and it is absolutely beautiful. The quality and the craft is superb, but the most beautiful thing about is the love and care put into its construction by lovely people that will probably never even meet Sam. We will give it its grand unveiling when mum gets back on sunday - we already know that Sam will absolutely LOVE it. Sam would say thanks himself if he could speak, but as he can't please take our thanks and take a bow. Please pass on our heartfelt thanks to all the folks who had a hand in its construction. ."So shines a good deed in a cruel world".

Sam, Julie, John, James and Jonathan.

Finished photos

Individual squares

Biography

Sam was born with opitz g/bbb syndrome, which causes abnormalities along the midline. He had hypospadias which he has needed 3 surgeries to repair and a laryngeal cleft which was repaired in 2004 resulting in a tracheotomy.

Whilst recovering in the hospital he contracted adenovirus, which caused the OB and bronchiectasis. he was on continuous oxygen for almost 5 years and will still require it when sick as the damage done to his lungs is now permanent. The aim is to keep him well as if the disease becomes even worse he may require a lung transplant in the future. He is doing well of his oxygen so far and has successfully had his tracheostomy removed. He has swallowing problems and is fed via a gastrostomy tube though he has been able to take small tastes since the tracheostomy came out. He attends a mainstream school and is doing very well - he loves going to school, though he does need time off when he is sick.