BiographyZachary was born at 41 weeks, and a whopping 10lb 5oz! He was totally adorable.
He failed his newborn hearing screening the next day but I just thought it was fluid.
Two weeks late after further tests we found out that he was completely deaf and would need hearing aids.
He was also born with a condition called congenital ptosis (droopy eyelid). This is where the eyelid muscle doesn’t develop properly and prevents the eyelid from opening fully.
He had corrective surgery for this in May 2016 and may need further surgery in the future.
Since having his hearing aids fitted at 6 weeks old, he had a million more assessments over the course of a year or so to determine whether he would be a candidate for cochlear implants! It was all a bit of a whirlwind, he eventually met criteria for cochlear implants and had surgery in December 2016, meaning he was able to hear just in time for Christmas.
After genetic testing we found out in May 2017 that all of Zachary’s problems were caused by a microdeletion on one of his chromosomes and he did indeed have Waardenburg Syndrome.
He is developmentally delayed; late to sit, crawl, and now at 2.5years old just mastering how to walk.
However, he is an amazing little boy with great strength and determination. We are sooo very very proud!
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