Millie-Mai was was born 17 days early with the cord around her neck. She was resuscitated and taken straight to the neonatal unit. When Millie-Mai was 24 hours old she was noted to be have ‘abnormal movements’. She was taken for a mri scan which revealed she had severe brain damage caused from lack of oxygen from her cord at birth.
We were taught to tube feed Millie-Mai as she didn’t have a safe swallow. She would need a peg inserted into her belly for feeds. We learnt how to suction and how to resuscitate her. After 7 weeks on the unit we were finally allowed to bring our baby girl home.
When Millie-Mai was one she had a tonic clonic seizure and was diagnosed with epilepsy. Then at 18 months old Millie-Mai became unwell and was blue lighted to hospital and straight to resus where we were told Millie-Mai was really poorly with pneumonia and we should ring immediate family as it was likely Millie-Mai wouldn’t survive the night. We were devastated.
Millie-Mai was placed on a life support machine in picu. After 5 days, Millie-Mai showed signs of improvement, she became stronger and was transferred to the ward after 2 weeks, she was referred for a funoplycation which she had done 3 months later. Millie-Mai has recently been diagnosed with scoliosis therefore has to wear a ‘second skin’. She’s still prone to chest infections which require hospital admissions, her epilepsy is largely controlled by her medication although she still has 20/30 absence seizures a day, Millie-mai is now 11 and she’s the most happiest girl we know!
Although she can’t communicate - she lets you know if she’s upset with her pet lip!