Daisy was a much longed for little girl. She was born at full term but there were complications during labour. Daisy because distressed and her heart stopped. After being born by emergency caesarean, Daisy was resuscitated and eventually started breathing after twenty minutes. This lack of oxygen had caused significant brain damage. We were rushed to a NICU many miles away and were told to expect the worst. Daisy had other plans. After many weeks and lots of training, we were finally able to bring Daisy home.
Daisy is 100% tube fed and has always required a lot of suction to keep her airway clear. In the early months she suffered from repeated chest infections. After suffering from pneumonia in Nov 2013, Daisy was in critical care for three months and endured a number of procedures and we nearly lost her when she went in to septic shock. It was after this that her Consultant asked us to consider a tracheostomy. This was the best decision we have made. Her airway is much clearer and she has suffered fewer infections. It has helped her to be more alert as she isn’t having to work as hard to breathe. Daisy still requires lots of suction but has adjusted to her tracheostomy brilliantly.
Daisy suffered from seizures at birth and they have reappeared at different points over he last five years. She has suffered from them more often recently but we are able to recognise the signs and deal with them at home to try to keep her out of hospital. Despite all this, Daisy is a sociable, vibrant and beautiful girl who is loved by everyone who meets her. She loves being outside and spending time with her sister and cousins.