Bobby was born by emergency section in December 2013, we were unaware of his condition during pregnancy. At 39 weeks I felt very unwell and was advised to go to hospital to be checked over. Bobby was delivered almost straight away as an emergency as on a scan his heartbeat was 263! A beautiful 9lb 5oz little boy was born and taken straight away as he didn't breathe for quite a few minutes after delivery. He was then transferred that evening to Birmingham Children's Hospital where he was diagnosed with hlhs.
His only treatment would be 3 open heart surgeries which carried their own risks or to let him pass away without treatment. We chose the surgical option. At only 2 days old, 23.12.2013, Bobby had his first 8 hour long open heart surgery. He became very poorly shortly after and had to be shocked with a defibrillator on several occasions. On 26.12.2013, Boxing Day, we were taken to a room and told they thought Bobby only had around 24 hours to survive as he was so poorly. A surgeon said his only option would be to put a direct line right into his heart, again with even more risk, but it was a chance which was our only one so we took it. Slowly, as days passed, Bobby got better and moved to the ward. Then after 12 long weeks in hospital he was discharged - a day we thought would never happen.
At 6 months Bobby had his second 6 hour open heart surgery, he was a healthy weight and bigger and stronger and was in hospital for only 9 days.
He is a happy little boy who takes everything in his stride. At 4 years old Bobby now needs his final open heart surgery. In February 2018 Bobby was admitted and had his 5 hour long surgery and came out super strong. We were in hospital just under 2 weeks and are now recovering at home so the quilt is perfect. He shouldn't need any more open heart surgeries in the near future but we are always thankful for what we have as there was a time we nearly didn't have him. It puts life into perspective. He is our inspiration x