Lewis D's quilt    (Quilt Completed)

Thank you

I just wanted to let you know Lewis's quilt has arrived and it is absolutely stunning. Lewis slept with it last night and had the best night's sleep he's had in a long time. Could you please thank everyone for their hard work. Lewis absolutely loves it and has already told all friends and family. It really will be treasured. Thank you so much for putting a smile on his face xx

Finished photos

Individual squares

Card

Stitched by: Kaz Bowen

Biography

Lewis was diagnosed at 11 months. He was sat on the floor playing with his toys and we noticed one shoulder was higher than the other. We had a look at his back, and his spine was an odd shape. We took him straight down to the hospital where he was x-rayed. The x-rays were passed onto us to pass back on to his dr once he was called back in. We held the x-rays up and Lewis's spine was literally c shaped.

At 18 months, the hospital started him in plaster cast jackets. He would keep the jacket on for 3 months at a time and could only have a bath after one cast came off and another went on {all done on the same day}. To wash his hair, his dad would hold him over the bath while I washed his hair. We could only wipe down his face, arms and legs. By the time Lewis was 4 the plaster cast jackets were no longer preventing the curve getting worse, so the next step was surgery.

Shortly after, Lewis had his 1st surgery to have all the metal work put into his back to hold his spine straight. He has had surgery every 6 months since to have the rods lengthened as he grows. He has just had another lengthening recently. We have just been told that Lewis is facing another large operation to remove all the metal work In his back, brand new metal work fitted and then fused to his spine. This big operation will need him to be in hospital for over a week with 3-4 days of that being him on hdu. He suffers a lot with back pain, and can't do everything his friends do such as trampolining, roller coasters or even playing football. He misses out on a lot but always has a smile on his face.