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LoveQuiltsUK - Dylan G's quilt

Dylan G's quilt    (Quilt Closed)

Born:October 2012
Illness: Congenital Central Hypoventilation Syndrome

Theme: Various Characters

Date opened: 11th Jul 2018
Date closed: 21st Jul 2018
Deadline: 26th Nov 2018

Photo of Dylan G

Theme details

Various Characters - Ben 10, Scooby Doo, Lego or Superheroes

Child Interests

Dylan's favourite colours are red, green and blue and his loves Scooby doo, Ben 10 and superheroes.


Dylan was born by emergency c section 2 weeks after his due date.

He struggled to feed and on the 2nd day he started vomiting bile - he also hadn't pooed or weed in this time. He was sent to Bristol Children's hospital for a contrast scan to check his intestines as they suspected Hirschsprung Disease due to family history. The scan wasn't conclusive but Bristol kept him in and started him on rectal washouts, at 5 days old his bowel perforated and he was rushed into emergency surgery where they gave him a ileostomy (stoma bag). We were trained on how to look after and change the bag and we were all set to come home.

When Dylan was 4 weeks old they noticed his oxygen levels were very low and he was quite sleepy. They had done some genetic testing and it was on this day we found out he had Congenital Central Hypoventilation Syndrome - a life threatening condition where the brain doesn't tell the lungs to breathe. He was rushed to PICU where he was intubated and sedated and one week later was given a tracheostomy, the condition means that he has to be ventilated every time he falls asleep or if he's unwell. Dylan finally came home 8 months later with a whole host of equipment and a care package.

Today Dylan is a cheeky 5.5 year old and is just about to finish his first year in reception. He doesn't let anything hold him back!


1.Stitcher: Nicola Dove, Barnsley, UK
In Progress

2.Scooby doo carving a pumpkin chart from TV Stitcher magazine Scooby doo carving a pumpkinStitcher: Karen Stephenson, Cambridgeshire, UK

3.Lego superhero batmanStitcher: Laura, Thetford, UK
In Progress

4.Michael Kramer Lego The FlashStitcher: Elaine Dixon, Athens, Greece
In Progress

5.This is a knitting pattern on “p-tites croux et jeux d aguiles” that I’ll convert to cross stitch - Ben 10 holding up his arm showing his watchStitcher: Kay, Doncaster, UK

6.The hulk full body Stitcher: Nicola, Elland, UK

7.Superman saluting-from DC Comics Superheroes Cross Stitch Classics leaflet by Leisure Arts Superman salutingStitcher: Helen Irwin, Hull, UK

8.Superhero bookmarks Stitcher: Beth Cotton, Wallasey , UK
In Progress

9.Superman Flying, Leisure Arts DC Comics Super Heroes Cross Stitch Classics Superman flyingStitcher: Jan S, Enid, Oklahoma, USA
In Progress

10.From LQUK files Baby groot in flowerpotStitcher: Lisa Toner, Bangkok, Thailand
In Progress

11.Scooby dooStitcher: Ann Woods, Crimplesham, England

12.Label Stitcher: Miss Debbie Elkington, Boston, Lincs, UK
In Progress

Squares received

Cross stitch square for Dylan G's quilt
Stitched by: Karen Stephenson
Submitted: Aug 2018

Cross stitch square for Dylan G's quilt
Stitched by: Kay
Submitted: Aug 2018

Cross stitch square for Dylan G's quilt
Stitched by: Nicola
Submitted: Jul 2018

Cross stitch square for Dylan G's quilt
Stitched by: Helen Irwin
Submitted: Aug 2018

Cross stitch square for Dylan G's quilt
Stitched by: Ann Woods
Submitted: Aug 2018


Card for Dylan G
Stitched by: Kaz Brown

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