Reece B's quilt (Quilt Completed) |
| Born: | 2008 |
| Illness: | Klinefelters, syndrome, Robinow syndrome,Asskogth Syndrome,tracheal abnormallity tracheostomy, tracheomalacia with long term segmental, bio pap ventil
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Theme: Dinosaurs etc
Quilt delivered: 30th Jul 2018 |
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Thank youReece would like to say thank you all so much for my quilt. It arrived today. Thank you every one who helped.
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Finished photos
Quilted by:
Heather
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Individual squares
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Stitched by:
Alice Watts
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Submitted: Jun 2017
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Stitched by:
Anne
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Submitted: Jun 2016
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Stitched by:
Eileen
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Submitted: Sep 2017
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Stitched by:
Ginny Pledger
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Submitted: Apr 2017
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Stitched by:
Heather
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Submitted: Jul 2018
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Stitched by:
Margaret
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Submitted: Jun 2016
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Stitched by:
Megan
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Submitted: May 2017
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Stitched by:
Monika
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Submitted: Feb 2018
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Stitched by:
Nicola Staples
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Submitted: Sep 2017
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Stitched by:
Sarah
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Submitted: Nov 2017
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Stitched by:
Sarah
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Submitted: Dec 2017
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Stitched by:
Yvonne
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Submitted: Apr 2017
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Card
Stitched by: Sarah Murphy |
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BiographyReece is a fun loving young man when well and copes really well being attached to a ventilator 23 hours. Reece has had several issues with the lack of tracheal ring in his throat from birth resulting in now having custom made trachys to help keep his throat open.
Because of the Klinefelter syndrome Reece has had to have several operations to bring his testicals from his stomach to a cooler part of the body, as far as his short blood supply would go, to lesson the fear of testicular cancer. Reece is a great advert for complex children, he just gets on with his life where possible with the restrictions the ventilator, along with humidifier, lets him.
We are almost to completion of his Emergency Health Care Plan, the final paperwork is awaiting confirmation of the low heart rate he is now experiencing. Once the hospital agree this his end of life plan will be in place.
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