Cohen M's quilt    (Quilt Completed)

Thank you

Cohen would like to say a massive thank you to each and everyone of you who amazingly take your time to stitch these amazing quilts. I can not thank you enough for such an amazing keepsake that will now start its journey of traveling where ever we go and to our many hospital admissions thank you again this means so much to Cohen xxx

Finished photos

Individual squares

Card

Stitched by: Kaz Bowen

Biography

Hello everyone, my name is Cohen but you will notice I’m called Coco. I am 3 years old and arrived very early into the world spending just 25 weeks in my mummy’s tummy, that’s a massive 15 weeks early. Arriving this early has left me with a few niggles. Let’s say that the bop bops (Cohen means Doctors) think they are massive hurdles in life but I am showing them I can do it and I’m proving them wrong. These are my medals and I wear and I fight them with pride..... Quadriplegic cerebral palsy, dystonia, vocal cord palsy, scoliosis, epilepsy, high frequency hearing loss, unsafe swallow, jejunostomy fed (a tube that goes into my bowel - sounds cool right - and last but most scary of them all is chronic lung disease. I have funny little balls (Cohen means cysts) that are growing in my lungs meaning I am a very poorly little boy. Mummy will write the medical terms of what this means for me. Cohen has asked me to explain to you all what chronic lung disease is and what it means for Cohen. The lungs of a newborn, especially premature babies, are fragile and are easy damaged. With injury, the tissue inside the lungs becomes inflamed and can break down causing scarring. This scarring can result in difficulty breathing and increased oxygen needs. Mechanical ventilation, oxygen use, low amount of surfactant and prematurity of the lungs, especially the air sacs, are not fully developed. These are all factors that have contributed to Cohen's extremely poor lung function. As Cohen said he also has cysts on both lungs. He is under a specialist respiratory team. Heartbreaking for Cohen and us as a family, we were told in February 2018 that Cohen has just 25 % lung function and we have been told we may have 2 months or two years with Cohen which is an unknown amount of time but Cohen will heartbreakingly die young. Cohen never stops smiling he really is our little super hero