Jack was born at 36 weeks, he was happy and healthy and was home after a couple of days in hospital. By the time he was 1, I noticed he was picking up every bug that was going round nursery. By 14 months old he'd got a bad chest infection which turned into bronchial pneumonia. Just when he started to eat again and seemed to be getting better, he took a turn for the worse and ended up in ICU on life support. He had caught the adenovirus which had attacked his lungs and caused them to collapse, subsequently the parts of his lungs that had collapsed then died off. After he was diagnosed we spent most winters in hospital as he got infection after infection. Six years ago we made the decision to move to the coast and cleaner air, since then Jack has only had a couple of infections.
Although Jack hasn't been getting as many infections his lung function is declining as he gets older. In 2015 he had a device fitted to his heart as the pressure due to his lung condition had caused problems. As time goes on he finds it harder to do things he once loved. As well as his respiratory consultants he is now also being monitored by the transplant team as at some point Jack will require a double lung transplant.