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LoveQuiltsUK - Alex C's quilt

Alex C's quilt   (Quilt Coming Soon)

Born:November 2009
Illness: Hydrocephalus, Panhypothyroidism, Cortical Visual Impairment, Seizures, Global Development Delay, XXY Kleinfelters Syndrome

Theme: Mickey Mouse

Quilt will open soon, keep checking back!
Photo of Alex C

Child Interests

Alex has Cortical Visual Impairment, so any really bright colours are ideal. He loves Disney characters and Mickey mouse is his favorite.


Alex spent the first nine months of his life in hospital in London, we lived in East Sussex, so this was very difficult. He eventually came home on a ventilator with a tracheostomy,and at 10 months he started having seizures, after 2 1/2 years he was decanualted, the seizures however still continue.
Alex is non verbal, he is fed through a gastrostomy tube and is a full time wheel chair user.
Alex is a very happy little boy, he loves meeting up with his friends at school and loves music particularly bells and woodwind instruments.

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