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LoveQuiltsUK - Alfie M's quilt

Alfie M's quilt    (Quilt currently being assembled)

Born:October 2016
Illness: Hypoplastic left heart syndrome and Vacterl Association

Theme: Mickey and Friends

Quilt currently being assembled
Photo of Alfie M

Theme details

Mickey and Friends - Backfilled quilt



Biography

Alfie has multiple conditions. His heart condition is a collection of congenital heart defects and is a life limiting condition with expectancy being early twenties. He has had so far 2 palliative open heart surgeries, 2 heart catheter repairs and is expected his 3rd open heart surgery between 3-4 years. He was born with Vacterl Association which also includes diagnosis of anorectal malformation for which he had emergency surgery for stoma at 2 days followed by 3 other surgeries. One of the surgeries was yet again an emergency due to obstruction and 2 of these surgeries were done just recently as we are still inpatients at our children's hospital. Alfie also has tethered cord with a spinal cord syrinx and newly diagnosed scoliosis, bigid scrotum, dual bifid kidneys with a large kidney stone (surgery for this year), hypoplastic left thumb and fused radius bone. Alfie will have 3 surgeries this year. The surgery which brings most uncertainty for us is for his spine due to the complexity and risks involved. Alfie is also tube feeding dependant and takes various medications. He has development delays due to so much hospital time and requires physiotherapy to help strengthen his muscles, wearing support boots and gaters to provide stability when standing holding onto us or furniture aswell as has specialist equipment to help with his posture. Despite everything our son is the happiest little boy I know. He is such a determined little boy and thoroughly enjoys life when he's well. He's a lovely funny little character and incredibly loving. Alfie is also a twin of 2 boys and they compliment each other beautifully.



Patterns


1.Stitcher: Patricia, Northern Ireland, UK
Received

2.Stitcher: Eileen, Newcastle, UK
Received

3.Stitcher: Jan S, Enid, Oklahoma, USA
Received

4.Stitcher: Sally, Hull, UK
Received

5.Stitcher: Debbie, St Neots, UK
Received

6.Stitcher: Jackie Rose, Aberdeen, Scotland
Received

7.Stitcher: Jackie Rose, Aberdeen, Scotland
Received

8.Stitcher: Jackie Rose, Aberdeen, Scotland
Received

9.Stitcher: Jackie Rose, Aberdeen, Scotland
Received

10.Stitcher: Jackie Rose, Aberdeen, Scotland
Received

11.Stitcher: Izabel, Dorset, UK
Received

12.Label Stitcher: Jan G, Hull, UK
Received


Squares received

Cross stitch square for Alfie M's quilt
Stitched by: Patricia
Submitted: Jul 2017

Cross stitch square for Alfie M's quilt
Stitched by: Eileen
Submitted: May 2018

Cross stitch square for Alfie M's quilt
Stitched by: Jan S
Submitted: Jun 2018

Cross stitch square for Alfie M's quilt
Stitched by: Sally
Submitted: Jul 2018

Cross stitch square for Alfie M's quilt
Stitched by: Debbie
Submitted: Jul 2018

Cross stitch square for Alfie M's quilt
Stitched by: Jackie Rose
Submitted: Aug 2018

Cross stitch square for Alfie M's quilt
Stitched by: Jackie Rose
Submitted: Aug 2018

Cross stitch square for Alfie M's quilt
Stitched by: Jackie Rose
Submitted: Aug 2018

Cross stitch square for Alfie M's quilt
Stitched by: Jackie Rose
Submitted: Aug 2018

Cross stitch square for Alfie M's quilt
Stitched by: Jackie Rose
Submitted: Aug 2018

Cross stitch square for Alfie M's quilt
Stitched by: Izabel
Submitted: Sep 2018

Cross stitch square for Alfie M's quilt
Stitched by: Jan G
Submitted: Jan 2019


Card

Card for Alfie M
Stitched by: Unknown

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