Logan N's quilt    (Quilt Completed)

Thank you

Thank you so much for your time, love and effort in making this for Logan. Photos don’t do it justice. As you can see he absolutely loves it and insisted on using it at bed time, despite the heat.

From the bottom of my heart, Thank you

Finished photos

Individual squares

Card

Stitched by: Nicola Bailey

Biography

Logan started being poorly aged 2 with serious chest infections including pneumonia. This resulted in many hospital admissions as his oxygen levels were dangerously low. Healthcare professionals said that it was asthma related but due to his age they couldnt give an offical diagnosis.

After yet another hospital admission a doctor wanted a chest x-ray. I knew something was wrong straight away, I could tell by how the x-ray staff looked at me.

Logan was then diagnosed with "early" early onset idiopathic scoliosis and we were referred to Great Ormond Street.

Logan's curve was serious and his spine was crushing his lungs, hence the chest infections. It was decided that they would try a brace which wouldn't correct the curve but would try to hold it to prevent it from getting any worse. Sadly x-rays 3 months later showed that this wasn't helping. The next step was to try casting, which is a plastercast "jacket". This involves the child being put out, stretched so that the spine is manipulated into a straighter position and then casted to hold the position.

Obviously this is tough for the child as they are unable to move in the same way and hard for me as mum. No bath times, no soft cuddles and the child has to re-learn how to do certain things like getting out of bed. The casting continued for 9 months.

I was absolutely gutted to be told that this too wasn't working and the only other option was major spinal surgery. This was scheduled for 2016 when Logan turned 5.

Logan was an ideal candidate for Magec Rods, which means he has 2 titanium rods fixed to his spine which are stretched every 3 months using magnets. It's amazing because previous treatment would have involved major surgery every 3-6 months.

Logan Has achieved amazing correction and has not since had a chest infection. The surgery does mean that Logan isn't able to do everything that other children do as he has to avoid anything that jolts the back e.g. bouncy castles.

We hope that Logan's rods will see him through to his teenage years when he will then have further surgery for a full spinal fusion.